Saturday, January 03, 2009

Started New Hemochromatosis Blog

Hi everyone.

I have decided to build a much better blog on Wordpress.
Videos and great information to help you live a better life.

Please check it out here

Don't be shy, make a post.
Let other hh sufferers know what's up with you.

Pat

Tuesday, May 20, 2008

Finally Somebody Has Answers

Hi.

Sure hope you are doing okay with your Hemochromatosis. [HH]
I got my phlebotomy this morning. It went well.

While I was there I asked a couple nurses what they knew about HH.
Thier answers were both the same...hardly nothing.

Well I just learned a ton of stuff from a great book I read.
I now have so many questions to ask my doctor. I will try and get her to get her own copy of the book. Maybe I should print it out and just give her a copy. At least then she will have a much better understanding of the disease. Sometimes I think she is trying to kill me. But I'm pretty sure she is just ignorant when it comes to HH.

Anyhoo...I was lucky enough for the author to sell me resell rights to the book. So now you have a chance to learn more about HH than
anyone else in the whole world could teach you.

Ironic Health is a book authored by Dr Chris Whittington regarding her experiences studing hemochromatosis cases with Professor Lawrie Powell, probably the foremost authority on Hereditary Hemochromatosis in the world. It was he who convinced the world that Hereditary Hemochromatosis was a genetic disease in 1989 and provided the impetus for the work that was to lead to the cloning of the HFE gene in 1996.

Let a Doctor explain this misunderstood Genetic Disease.

Besides being the HH Bible, it is also a very interesting read.
I will also give you some bonus articles that are packed with technical stuff that you may be interested in.


Dr. Chris Whittington is a recognized authority on hemochromatosis and has practiced medicine in Australia, New Zealand and Canada and has lived in Canada since 1985.


She Currently practices in Abbotsford, British Columbia.
is a Clinical Associate Professor of Family Practice at the University of British Columbia.

is a Past President of the British Columbia College of Family Physicians.

has published and presented a number of papers on hemochromatosis
is currently engaged in ongoing research into hereditary hemochromatosis.

Dr Whittington's mother has hemochromatosis so she has a personal interest in seeing that patients are helped.

What Dr Whittington's Peers have Said:

"Chris Whittington's comprehensive review of hemochromatosis in the real world - Ironic Health - is a 'must read' for both patients and their doctors. Make it a point to read this one from cover to cover".

This really is the best stuff I've read on HH.

I really, really, hope that you will go here:

Ironic Health

and buy this absolutely awesome book.

If you don't think this book delivers, just let me know...
I will refund every cent. And you can keep the book.

So I hope you will do yourself a giant favor and pickup a copy.
Delivered over the internet so you can be reading it in about 30 seconds.

Sincerily,

W. Pat Peters

Keep on keepin on.

Friday, April 04, 2008

Cirrhosis of the liver

If you’re fortunate enough to get treated for hemochromatosis before it damages your organs, then you can prevent the serious complications we’ve talked about. If you already have some of these conditions, treatment may slow the progression of these health concerns. In some cases, you may even find some of these conditions may be improved.


If you already have cirrhosis of the liver, your physician may – in addition to treating your iron overload – monitor you for cancer of the liver through an abdominal ultrasound as well as an alpha-fetoprotein blood test every six months.


Some individuals find, though, that they must endure literally years of this procedure before enough iron has been removed from their system. According to Raymond J. Bergeron and his colleagues at the University of Florida treatments as they exist now, remove only tiny amounts of iron from the most sensitive organs, like the heart.


In response to this problem according to the American Chemical Society, they report the synthesis and the early testing on laboratory animals of what could be a new generation of iron-chelating drugs. These compounds may be able to remove excess iron from the body in a more efficient manner than is currently done. These compounds work by targeting specific, iron-sensitive organs, especially the liver, the heart and the pancreas. The research is still in its infancy but may prove to help many who now undergo prolonged treatment.

Hemochromatosis

Saturday, January 19, 2008

We Got More Hemochromatosis Videos

Check em out HERE

If clicking on HERE isn't working for you, just copy and paste this:

http://www.freedom-biz.com/hemochromatosis

into your browser.

Pat

Wednesday, December 26, 2007

Hemochromatosis Tips To Live By

Hemochromatosis is the number one killer of genetic diseases.

But not to worry. You don't have to become a statistic.
Just take the following suggestions to heart and you will
most likely be okay. Tannin can be a big help in reducing
the amount of iron your body takes in.

Most herbal teas do not contain tannin.
Dark teas such as oolong and 'Green Tea' do have it.

Personally I like to make a bunch of green tea, decaf
of course, put it in the fridge, and drink a bit with every meal.

If it wasn't decaf I would be up all night. The tea with the tannin
will slow down your iron absorbtion and is all around good for ya.

Watch your vitamin C intake. Vitamin C will help move the iron around
to your organs and we don't want that.

I have also heard that calcium slows down iron absorbtion too.
So a little cottage cheese with meals may help.

Make sure your vitamins don't have iron or vitamin C.

You should not drink any high vitamin C juices at least 3 hours
before or after a meal.

Hemochromatosis sufferers are 32% more likely to have a stroke.
I don't know who came up with that number. But I like to take Omega3
fatty acids. A little stroke and heart attack prevention can't hurt.

Drink lots of water to help keep your blood thin.

If you go for a phlebotomy and your blood is too thick
and keeps coagulating in the tube, the nurse may try to
give you heparin, a powerful agent that interferes with
the bodys normal clotting process. Not good. I just say no.

I come back after drinking a ton of water. Seems to work.
Alfalfa sprouts and onions are good blood thinners too.

I take it everyday.

Milk thistle extract [silymarin] might still be controversial
by some medical pros. I have no doubt about the powerful liver
protecting benefits of milk thistle. My results have been real good.
The old liver seems to be doing its job again.

Alcohol is one of the most harmful liver toxins on the planet.
Milk thistle extract can have a dramatic effect limiting alcohol damage.
Good stuff.

I use basic common sense and never indulge in any food or snack that
has been fortified with iron or vitamin C.

I have been using the same vein for nearly 10 years. It is getting a
bit scarred and not delivering the blood too well now. When switching
veins I have discovered that the closer the needle gets to your wrist,
the more painful it is.

I try to stay as high up the arm as possible. Seems to be less nerves
up there and is not nearly as painful.

One more quick tip: Never eat food that has been cooked in cast iron.
Iron from the pan will soak into the food and do more damage to your body.

Hemochromatosis

Saturday, December 22, 2007

New Medications Found For Hemochromatosis

This post is dedicated in loving memory to Josephine Bogie Thomas, a founding board member of the American Hemochromatosis Society. Seventeen years after a late stage diagnosis, she died of liver cancer due to HFE-associated hereditary hemochromatosis (HH) on May 13, 1999 in Pittsburgh, Pennsylvania.

New Medications Found For Hemochromatosis
and other Diseases involving iron overload.

Hemochromatosis is basically a genetic disease characterized by improper processing by the body of dietary iron which causes iron to build up in a number of body parts, eventually causing organ dysfunction. It is the main iron overload disorder.

The study which has been explained in a recent issue of the Journal of Medicinal Chemistry has Raymond Bergeron and colleagues at the University of Florida explain that current treatments remove only small amounts of iron from sensitive organs such as the heart. Treatment sometimes must continue for years to remove enough iron to prevent organ damage.

Now the researchers report the synthesis and early testing in laboratory animals of a possible new generation of iron chelating drugs; compounds that remove excess iron from the body. Apart form working more efficiently than existing medications, the new compounds target specific organs such as the liver, heart and pancreas that are most vulnerable to iron-overload damage.

I will put any new findings about this procedure on the blog as soon as I hear about it.

Sunday, December 09, 2007

Iron Has It's Deadly Side

Iron is something that is important to the overall functioning of the body. Iron works with the red blood cells in order to deliver the proper amount of oxygen that is required for normal functioning in the body. Iron is a necessity to the human body. It is necessary to have iron in the body so that the rest of your body can receive the oxygen that is necessary. You cannot live without iron in your body. In this article, we will review the deadly side of iron.

It has recently been found that if there is too much or too little iron in the body it can prove to be very damaging and even fatal. If you have too little iron, your body lacks the oxygen that is required to live. If you have too much iron in your body, it can interfere with the normal functioning of important organs in the body like the liver and heart. Additionally, too much iron can cause damage to the joints in the body. Having too much iron in the body can also lead to certain types of cancers.

If a person has too little iron in their body, this is often referred to as anemia. If a person has too much iron in their body this is often referred to as Hemochromatosis. Both of these conditions can be very harmful to the body and can result in death. There are many symptoms associated with an abundance of iron and too little iron. It is important to understand that you cannot simply diagnose yourself. If you suspect that you have too little iron or too much iron, you should discuss your concerns with your doctor. The doctor will be able to perform a complete blood test and various other types of testing to determine if you have an issue. Once it has been confirmed that you have an issue with the iron in your body, the doctor will assign a treatment that is specifically for you.

Hemochromatosi. Strive To Stay Alive